Skip to main content

More than tea and cake: A realist evaluation of memory cafes in Cornwall

Project summary

The National Institute of Health Research (NIHR) Research Capacity in Dementia Care Programme (RCDCP) aims to develop and evaluate interventions in line with the James Lind priorities for dementia research(1); complex intervention methods, and clinical relevance. The aim of this project is to explore the effect of memory cafes as an intervention for people with dementia and their carers. A memory café is a form of community based support group that has evolved from the Alzheimer cafe model, created in the Netherlands in 1997(2). The Alzheimer Café has clearly identified aims and structure(2) in comparison to other memory cafes, where this information is limited. Furthermore, despite their growing popularity and recognition in the National Dementia Strategy(3), there is a dearth of evidence on what they do and the experiences of the people that use them; and no wide scale evaluation has been conducted(4).

Two recent systematic reviews on support groups for people with dementia concluded that whilst there are reported subjective benefits, no conclusions can be drawn on whether they promote positive psychosocial outcomes(5,6). Memory cafes are facilitated by volunteers and are not time limited, therefore may vary. A realist approach asks ‘what works for whom and in what circumstances(7). This theory driven, iterative methodology operationalises hunches and hypotheses into programme theories; comprising context, mechanism and outcome. These programme theories will be explored, tested and refined through realist review, stakeholder involvement and realist evaluation. The PhD student also brings personal experience of developing and running of a memory café.   

If you’d like to learn more, please contact Lisa Burrows via Email

References

1) The James Lind Alliance and the Alzheimer’s Society (2013) ‘Outcomes of the James Lind Alliance Dementia priority setting partnership’ available online at http://www.alzheimers.org.uk/site/scripts/download_info.php?fileID=2226 accessed 28/3/2014

2) Miesen, B. and Jones, M.M. (2004) ‘The Alzheimer Café concept: A response to the trauma, drama and tragedy of dementia’ in Jones, M.M. and Miesen, B.M.L. (eds) Care-Giving in Dementia: Research and applications, Volume 3, Brunner-Routledge, East Sussex.

3) Commission for Rural Communities (2008) Service needs and delivery following dementia diagnosis: evidence based review, Commission for Rural Communities, Gloucestershire.

4) Toms, G.R., Clare, L., Nixon, J. and Quinn, C. (2015) ‘A systematic narrative review of support groups for people with dementia’ International Psychogeriatrics, vol27(9), pp1439-1465

5) Toms, G.R., Clare, L., Nixon, J. and Quinn, C. (2015) ‘A systematic narrative review of support groups for people with dementia’ International Psychogeriatrics, vol27(9), pp1439-1465

6) Leung, P., Orrell, M. and Orgeta, V. (2015) ‘Social support group interventions in people with dementia and mild cognitive impairment: a systematic review of the literature’ International Journal of Geriatric Psychiatry, vol30(1), pp1-9

7) Pawson, R. and Tilley, N. (1997) Realistic Evaluation, SAGE Publications Ltd, London.

Upcoming Events

Oct
30

Searching and Review Clinic

Room 1.47, South Cloisters, St Luke's Campus, University of Exeter

These clinics have been set up to help the PenCLAHRC Evidence Synthesis Team to manage and respond...
More information

Nov
06

PPI Advice Clinics

Exeter (South Cloisters, St Luke’s)

Do you need to involve service users in your work? Whatever your query, from finding out...
More information

Calendar

News

Research shows weight loss can be boosted fivefold thanks to novel mental imagery technique

24 September 2018

Overweight people who used a new motivational intervention called Functional Imagery Training (FIT) lost an...
Read more

PenCHORD teach at international summer school focused on economic modelling in healthcare

20 September 2018

This August saw the first International Summer School Riga (ISSR), which was hosted and organised...
Read more

Stroke doubles dementia risk, concludes large-scale study

31 August 2018

People who have had a stroke are around twice as likely to develop dementia, according...
Read more

News

Research Projects

D-PACT: Dementia - Person Aligned Care Team

Theme: Mental Health & Dementia

The Dementia – PACT (D-PACT) programme is a five-year project, funded by a National Institute...
Read more

PenCHORD - Optimising the location of urgent care sites in Cornwall

Theme: PenCHORD

This project aimed to assess the optimal number and location of sites for patients to...
Read more

Research Projects