The first free and openly-available comprehensive data resource for international measures relating to patient experience and person centred care has been launched, providing a ‘one-stop’ website for commissioners, health managers, researchers and others.
Measures for Person Centred Coordinated Care has been compiled by PenCLAHRC researchers and is being supported by NHS England, the South West Academic Health Science Network, Plymouth University Peninsula Schools of Medicine and Dentistry and the Royal Devon and Exeter NHS Foundation Trust.
The aim of the project is to deliver a portfolio of intelligence about measures for Person Centred Coordinated Care (“P3C”) for people with Long-Term Conditions (LTCs), multiple-LTCs, and those at the End of their Life (EoL). One component of this project is to provide an online compendium of measures – defined as Patient Reported Outcome Measures (PROMs) and Patient Reported Experience Measures (PREMs) – that can be utilised within programmes that aim to deliver or evaluate P3C in target populations.
The resulting website provides a user-friendly front-end to the compendium and acts as a gateway to measures for person centred care. The other key element of this project includes the development of a guide to support the delivery and evaluation of Person Centred Coordinated Care, which will be launched in autumn 2016.
PenCLAHRC Senior Research Fellow, Dr Helen Lloyd, who leads the team on this project said:
“Data relating to the patient experience and patient centred care sit at the heart of care policy and delivery, yet until now the resources required by commissioners, managers and those carrying out research to improve and enhance services have been disparate and disjointed. Measures for Person Centred Coordinated Care brings together the vast majority of measures and data ‘under one roof’, with the intention of making it easier to source information for those who need it.”