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Peninsula Public Involvement Group (PenPIG) member, Malcolm, has recently embarked on a journey to become a Cochrane Citizen Scientist. According to Cochrane, ‘Citizen Scientists’ play an important role in the research community and ‘help identify the evidence needed to make informed healthcare decisions.’ For Malcolm, becoming a ‘Citizen Scientist’ was an obvious choice due to his experience and background.
Throughout his lifetime, like many of us, Malcolm has witnessed his friends and family endure multiple health complications. His experiences sparked an interest in medical research, and he soon found himself on various boards and groups; from leading health walks for his...Read more
On Thursday 5th July 2018, the NHS turned 70 years old.
Since its inception, the NHS has constantly evolved in response to changing needs, and has transformed the health and wellbeing of the nation. To commemorate this, our Patient and Public Involvement (PPI) team have created an animation encouraging public involvement in health research.
The team worked closely with Mary, a parent carer of a disabled child, and a member of PenCRU's Family Faculty. In the video, Mary discusses what persuaded to get involved in research, and why she would encourage others to do so.
Dr Kristin Liabo, Senior Research Fellow in the Patient and Public Involvement team, emphasises...Read more
The PARTNERS2 study has been awarded a CRN, McPin and MQ award for service user and carer involvement in mental health research. The Engager study has also been recognised with a highly commended runner up award.
The CRN, McPin and MQ award for service user and carer involvement in mental health research is a joint collaboration between NIHR Clinical Research Network, McPin Foundation, and MQ: Transforming Mental Health. It recognises the achievements of research teams which actively seek to involve patients and the public at each stage of the research process, and of service users and carers who are making a difference to mental health research.
This year's winners were announced at a...Read more
Carers have spoken about the value of sharing their experiences with students and researchers at the University of Exeter Medical School, to increase awareness and help support other carers in the community.
Volunteer Heather Boult, from Countess Wear in Exeter, said:
“As part of Carers week, it's about saying you are not alone in how you feel. Speak up and get involved in research, as it's the most rewarding, challenging and best way to change and improve the future for all patients. Don't be your illness or your NHS number or' just a patient', you are a person with a voice and...Read more
Senior PenCLAHRC staff members have shared their experiences of patient and public involvement in research (PPI), in video interviews with health information website healthtalk.org.
The website is run by a charity and provides free, reliable information about people’s experiences of more than 85 health-related issues including cancer, pregnancy, drugs and motor-neurone disease.
It was set up in 2001 by Oxford GP Dr Ann McPherson CBE and Dr Andrew Herxheimer after Dr McPherson was diagnosed with breast cancer and couldn’t find anyone to talk to about what it was like to experience the illness.
In his interview with the website, Director of PenCLAHRC Professor...Read more
Conducting research that is relevant to the concerns and needs of patients and the public is a key part of what PenCLAHRC does. Our renowned Patient and Public Involvement (PPI) Team use innovative methods to ensure meaningful patient and public involvement and engagement is embedded in everything we do.
Key to our PPI success is the Peninsula Patient and Public Involvement Group (PenPIG) who have been working alongside PenCLAHRC since 2009 to maximise the benefits of health research and ensure it maintains relevance to the patient. The group is made up of a diverse selection of volunteers, with many having personal...Read more
All the fun of the (evidence-based) fair came to PenCLAHRC’s Veysey Building recently for an Engaging Games morning. This included an evidence-based fairy tale writing competition and a collection of research-based games such as ‘Be There Dragons’, an activity intended to demonstrate that more diagnostic testing does not automatically lead to more certainty.
These games have been designed by Dr Kath Maguire from PenCLAHRC's Patient and Public Involvement Team to help translate the concepts of evidence-based medicine into fun and practical learning resources for members of the public and clinicians alike. Kath developed these resources as part of her research into...Read more
PenCLAHRC researcher Dr Kath Maguire has been recognised as an inspirational woman as part of the University of Exeter International Women's Day (IWD) 2015 celebrations. Kath is an Associate Research Fellow in Patient and Public Involvement (PPI) for PenCLAHRC's PPI team and has been involved in health research for a number of years, joining PenCLAHRC as a member of PenPIG (PenCLAHRC's user involvement group).
As a Public Engagement Champion Kath works with community researchers on development projects, assisting them in accessing research information and showcasing their work. Kath completed her PhD in Public and Patient Involvement in Theory and in Practice and is skilled in encouraging people to engage with research...Read more