Skip to main content

Publications

Below you can find a selection of the PPI team's publications in journals, books and at conference. Current and former PPI Team authors highlighted in bold, PenPIG authors are underlined.

The papers below are PPI-specific publications; for a full list of PenCLAHRC publications, visit the PenCLAHRC Publications Database.

Papers

2016

Rogers, M., Bethel, A. and Boddy, K. (2016), Development and testing of a medline search filter for identifying patient and public involvement in health research. Health Info Libr J. doi:10.1111/hir.12157: http://onlinelibrary.wiley.com/doi/10.1111/hir.12157/abstract?campaign=wolearlyview

Liabo K, McKenna C, Ingold A, Roberts H. (2016) Leaving foster and residential care: a participatory study of care leavers’ experiences of health and social care transitions. In Child: care, health and development, Nov 29th, online early, DOI: 10.1111/cch.12426, http://onlinelibrary.wiley.com/doi/10.1111/cch.12426/full

Liabo, K. (2016) Care leavers’ involvement in research: An ethnographic case study on impact. Qualitative Social Work

Britten N, Maguire K. Lay knowledge, social movements and the use of medicines: Personal reflections. Health 2016; 20(2):77-93

2015

S. Bailey, K. Boddy , S. Briscoe and C. Morris (2015) Involving disabled children and young people as partners in research: a systematic review. Child: Care, Health & Development, 41 (4) pp505–514: http://onlinelibrary.wiley.com/doi/10.1111/cch.12197/abstract

Gibson A, Boddy K, Maguire K, Britten N, et al. Exploring the impact of providing evidence-based medicine training to service users. Research Involvement and Engagement (2015) 1:10. DOI 10.1186/s40900-015-0010-y

Liabo K, Rees R and Stewart R. Public involvement in research: Making sense of the diversity (2015); 20(1): 45-51. Journal of Health Services Research & Policy http://hsr.sagepub.com/content/20/1/45.short

2014

N Britten, S Denford, F Harris-Golesworthy, S Jibson, N Pyart, K Stein (2014). Patient involvement in drug licensing: a case study. Social Science and Medicine http://dx.doi.org/10.1016/j.socscimed.2014.10.024

Ashurst EJ, Jones RB, Abraham C, Jenner M, Boddy K, Besser RE, Hammersley S, Pinkney J. The Diabetes App Challenge: User-Led Development and Piloting of Internet Applications Enabling Young People With Diabetes to Set the Focus for Their Diabetes Consultations. Med 2.0 2014;3(2):e5

Snape, D., Kirkham, J., Britten, N., Froggatt, K., Gradinger, F., Lobban, F., Popay, J., Wyatt, K., Jacoby A. Exploring perceived barriers, drivers, impacts and the need for evaluation of public involvement in health and social care research: a modified Delphi study. BMJ Open 2014;4:6 e004943 doi:10.1136/bmjopen-2014-004943.

Rycroft-Malone, J.,  Anderson, R., Crane, R.S., Gibson, A., Gradinger, F., Owen Griffiths, H., Mercer, S., and Kuyken, W. Accessibility and implementation in UK services of an effective depression relapse prevention programme – mindfulness-based cognitive therapy (MBCT): ASPIRE study protocol, Implementation Science 2014, 9:62.

Snape D, Kirkham J, Preston J, Popay J, Britten N, Collins M, Froggatt K, Gibson A, Lobban F, Wyatt K, Jacoby A. Exploring areas of consensus and conflict around values underpinning public involvement in health and social care research: a modified Delphi study. BMJ Open 2014;4:e004217 doi:10.1136/bmjopen-2013-004217.

2013

Whear R, Abdul-Rahman AK, Thompson-Coon J, Boddy K, Perry MG, Stein K. Patient initiated clinics for patients with chronic or recurrent conditions managed in secondary care: a systematic review of patient reported outcomes and patient and clinician satisfaction. BMC Health Services Research. 2013;13: 501.

Whear R, Abdul-Rahman AK, Boddy K, Thompson-Coon J, Perry M, Stein K. The clinical effectiveness of patient initiated clinics for patients with chronic or recurrent conditions managed in secondary care: a systematic review. PloS one. 2013;8(10):e74774.

Pearson, M., Monks, T.,  Gibson,  A.,  Allen,  M.,  Komashieb, A.,  Fordyce, A.,  Harris-Golesworthy, F., Pitt, M.,  Brailsford, S. and Stein,  K.  Involving patients and the public in healthcare Operational Research - the challenges and opportunities. Operations Research for Healthcare Operations Research for Health Care 2 (2013) 86–89 

Gradinger, F., Britten, N., Wyatt, K., Froggatt, K., Gibson, A., Jacoby, A., Lobban, F., Mayes, D.,  Snape, D., Rawcliffe, D., Popay, J. Values associated with public involvement in health and social care research: a narrative review. Health Expectations Online Dec 2013.

Frost J, Anderson R, Argyle C,  Daly M, Harris-Golesworthy F, Harris J, Gibson A, Ingram W,  Pinkney J, Ukoumunne O, Vaidya B, Vickery J, Britten NA pilot randomised controlled trial of a preconsultation web-based intervention to improve the care quality and clinical outcomes of diabetes outpatients (DIAT).  BMJ Open 2013;3:e003396 doi:10.1136/bmjopen-2013-003396.

2012

Whear R, Thompson-Coon J, Boddy K, Papworth H, Frier J, Stein K. Establishing local priorities for a health research agenda. Health Expectations. 2012. doi: 10.1111/hex.12029.

Stewart R, Liabo K. Involvement in research without compromising research quality. Journal of Health Services Research & Policy 2012; 17 (4):248-51 http://hsr.sagepub.com/content/17/4/248.full

Uhm S, Liabo K, Stewart R, Rees R, Oliver S. Patient and public perspectives shaping scientific and medical research: panels for data, discussions and decisions. Journal of Patient Intelligence 2012; 4:1-10. http://www.vibis.dk/sites/vibis.dk/files/u148/pi-17835-patient-and-public-perspectives-shaping-scientific-and-medic_011312.pdf

Liabo K (2013) Service user involvement in research: Collaborating on a systematic review with young people who have experience of being in care. PhD thesis. London: Institute of Education

Gibson A, Britten N, Lynch J. Theoretical Directions for an Emancipatory Concept of Patient and Public Involvement. Health 2012; doi: 10.1177/1363459312438563 [You may require a subscription to access this article] [link to poster]

2011

Gibson A, Lewando-Hundt G, Blaxter L. Weak and Strong Publics: Drawing on Nancy Fraser to Explore Parental Participation in Neonatal Networks. Health Expectations 2011; doi: 10.1111/j.1369-7625.2011.00735.x

V Edwards, K Wyatt, S Logan, N Britten (2011). Consulting parents about the design of a randomised controlled trial of osteopathy for children with cerebral palsy. Health Expectations; 14: 429-438.

Wyatt K, V Edwards, L Franck, N Britten, S Creanor, A Maddick, S Logan (2011). Cranial osteopathy for children with cerebral palsy: a randomised controlled trial. Archives of Disease in Childhood; 96: 505-512.

Pre-2010

Curtis K, Liabo K, Roberts H, Barker M. Consulted but not heard: A qualitative study of young people’s views of their local health service. Health Expectations 2004;7 (2):149-56 http://onlinelibrary.wiley.com/doi/10.1111/j.1369-7625.2004.00265.x/full

 

Book Chapters

Purtell R, and Gibson A, (2012) How to make health and social care research radical and really, really useful. Book chapter in Long-term conditions: challenges in health and social care (editors Heller T.D, and Lloyd C.) Sage, London, pp69-79.

Staniszewska, S., Mockford, C., Gibson, A,. Herron-Marx, S., and Putz, P. (2012) Moving forward: Understanding the negative impacts of patient and public involvement in health service planning, development and evaluation. Book chapter in Critical perspectives on user involvement. (eds P Cotterill and Barnes M) Policy Press, Bristol, pp129-141

 

Other

Maguire K., Jones E., Williams-Yesson B., Stevens S.(2014) Valuing patient and public involvement in research. Nursing Times; 110: 45, 22-23.

Maguire K (2014) Putting the horse before the cart: an agenda for public engagement. INVOLVE Autumn 2014 Newsletter.

Upcoming Events

Sep
06

Making Sense of Health Research...

Room 1.24 South Cloisters - University of Exeter - St Lukes Campus

An introduction to making sense of evidence Introduction to Making Sense of Evidence During this talk a...
More information

Sep
08

Frailty: Recent clinical advances and...

South Cloisters 3.06 (St Lukes Campus - University of Exeter)

PenCLAHRC/Complex Intervention Research Group Seminar Frailty: Recent clinical advances and next steps for research Friday 8th September...
More information

Calendar

News

Study reveals that exclusion from school can trigger long-term psychiatric illness

21 July 2017

Excluding children from school may lead to long-term psychiatric problems and psychological distress, a study...
Read more

PenCLAHRC's take on social prescribing in BMJ Opinion

19 July 2017

Social prescribing has the potential to address many of the factors that perpetuate illness, decrease...
Read more

Results of GREAT trial released at Alzheimers Association International Conference 2017

19 July 2017

A large-scale trial led by the University of Exeter, presented at the international Alzheimer’s Association...
Read more

News

Research Projects

Public involvement in suicide prevention

Theme: Mental Health & Dementia

A research programme examining a public health intervention designed to help members of the public...
Read more

PenCHORD: Modelling the optimal size of Derriford Ambulatory Care Unit (ACU)

Theme: Evidence for Policy and Practice

Providing modelling evidence of the optimal size for an expanded Ambulatory Care Unit (ACU) at...
Read more

Research Projects