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Publications

Below you can find a selection of the PPI team's publications in journals, books and at conference. Current and former PPI Team authors highlighted in bold, PenPIG authors are underlined.

The papers below are PPI-specific publications; for a full list of PenCLAHRC publications, visit the PenCLAHRC Publications Database.

Papers

2017

NEW: Goodwin, E., Boddy, K., Tatnell, L., Hawton, A. (2017)  Involving Members of the Public in Health Economics Research: Insights from Selecting Health States for Valuation to Estimate Quality-Adjusted Life-Year (QALY) Weights, Appl Health Econ Health Policy https://doi.org/10.1007/s40258-017-0355-5

Ukoumunne, O., Vaidya, B., Frost, J., Anderson, R., Argyle, C., Daly, M., Harris-Golesworthy, F., Harris,. J.,  Gibson, A., Ingram, W., Pinkney, J., Vickery, J., Britten, N. (2017). A pre-consultation web-based tool to generate an agenda for discussion in diabetes outpatient clinics to improve patient outcomes (DIAT): a feasibility study. BMJ Open: doi:10.1136/bmjopen-2016-013519.

A Gibson, J Welsman, N Britten (2017). Evaluating patient and public involvement in health research: from theoretical model to practical workshop. Health Expectations 20:5 826–835. doi:10.1111/hex.12486

Maguire, K, Britten, N. (in press). “You’re there because you are unprofessional”: patient and public involvement as liminal knowledge spaces. Sociology of Health and Illness.

2016

Rogers, M., Bethel, A. and Boddy, K. (2016), Development and testing of a medline search filter for identifying patient and public involvement in health research. Health Info Libr J. doi:10.1111/hir.12157: http://onlinelibrary.wiley.com/doi/10.1111/hir.12157/abstract?campaign=wolearlyview

Liabo K, McKenna C, Ingold A, Roberts H. (2016) Leaving foster and residential care: a participatory study of care leavers’ experiences of health and social care transitions. In Child: care, health and development, Nov 29th, online early, DOI: 10.1111/cch.12426, http://onlinelibrary.wiley.com/doi/10.1111/cch.12426/full

Liabo, K. (2016) Care leavers’ involvement in research: An ethnographic case study on impact. Qualitative Social Work

Britten N, Maguire K (2016). Lay knowledge, social movements and the use of medicines: Personal reflections . Health 20(2):77-93

2015

J Reeve, M Dickenson, J Harris, E Ranson, U Dohnhammar, L Cooper, J Krska, R Byng, N Britten (2015). Solutions to problematic polypharmacy: learning from the expertise of patients. British Journal of General Practice, June 2015;319-320. doi:10.3399/bjgp15X685465

S. Bailey, K. Boddy , S. Briscoe and C. Morris (2015) Involving disabled children and young people as partners in research: a systematic review. Child: Care, Health & Development, 41 (4) pp505–514: http://onlinelibrary.wiley.com/doi/10.1111/cch.12197/abstract

Gibson A, Boddy K, Maguire K, Britten N, et al. (2015) Exploring the impact of providing evidence-based medicine training to service users. Research Involvement and Engagement (2015) 1:10. DOI 10.1186/s40900-015-0010-y

Liabo K, Rees R and Stewart R. (2015) Public involvement in research: Making sense of the diversity. 20(1): 45-51. Journal of Health Services Research & Policy http://hsr.sagepub.com/content/20/1/45.short

2014

N Britten, S Denford, F Harris-Golesworthy, S Jibson, N Pyart, K Stein (2014). Patient involvement in drug licensing: a case study. Social Science and Medicine http://dx.doi.org/10.1016/j.socscimed.2014.10.024

Ashurst EJ, Jones RB, Abraham C, Jenner M, Boddy K, Besser RE, Hammersley S, Pinkney J. The Diabetes App Challenge: User-Led Development and Piloting of Internet Applications Enabling Young People With Diabetes to Set the Focus for Their Diabetes Consultations. Med 2.0 2014;3(2):e5

Snape, D., Kirkham, J., Britten, N., Froggatt, K., Gradinger, F., Lobban, F., Popay, J., Wyatt, K., Jacoby A. (2014) Exploring perceived barriers, drivers, impacts and the need for evaluation of public involvement in health and social care research: a modified Delphi studyBMJ Open 2014;4:6 doi:10.1136/bmjopen-2014-004943.

Rycroft-Malone, J.,  Anderson, R., Crane, R.S., Gibson, A., Gradinger, F., Owen Griffiths, H., Mercer, S., and Kuyken, W. Accessibility and implementation in UK services of an effective depression relapse prevention programme – mindfulness-based cognitive therapy (MBCT): ASPIRE study protocolImplementation Science 2014, 9:62.

Snape D, Kirkham J, Preston J, Popay J, Britten N, Collins M, Froggatt K, Gibson A, Lobban F, Wyatt K, Jacoby A. Exploring areas of consensus and conflict around values underpinning public involvement in health and social care research: a modified Delphi studyBMJ Open 2014;4:e004217 doi:10.1136/bmjopen-2013-004217.

Welsman, J., Gibson, A., Heaton, J., Britten, N., Involving patients and the public in healthcare operational research BMJ 2014; 349 https://doi.org/10.1136/bmj.g4903

2013

Whear R, Abdul-Rahman AK, Thompson-Coon J, Boddy K, Perry MG, Stein K. Patient initiated clinics for patients with chronic or recurrent conditions managed in secondary care: a systematic review of patient reported outcomes and patient and clinician satisfaction. BMC Health Services Research. 2013;13: 501.

Whear R, Abdul-Rahman AK, Boddy K, Thompson-Coon J, Perry M, Stein K. The clinical effectiveness of patient initiated clinics for patients with chronic or recurrent conditions managed in secondary care: a systematic review. PloS one. 2013;8(10):e74774.

Pearson, M., Monks, T.,  Gibson,  A.,  Allen,  M.,  Komashieb, A.,  Fordyce, A.,  Harris-Golesworthy, F., Pitt, M.,  Brailsford, S. and Stein,  K.  Involving patients and the public in healthcare Operational Research - the challenges and opportunitiesOperations Research for Health Care 2 (2013) 86–89 

Gradinger, F., Britten, N., Wyatt, K., Froggatt, K., Gibson, A., Jacoby, A., Lobban, F., Mayes, D.,  Snape, D., Rawcliffe, D., Popay, J. Values associated with public involvement in health and social care research: a narrative review. Health Expectations Online Dec 2013.

Frost J, Anderson R, Argyle C,  Daly M, Harris-Golesworthy F, Harris J, Gibson A, Ingram W,  Pinkney J, Ukoumunne O, Vaidya B, Vickery J, Britten NA pilot randomised controlled trial of a preconsultation web-based intervention to improve the care quality and clinical outcomes of diabetes outpatients (DIAT)BMJ Open 2013;3:e003396 doi:10.1136/bmjopen-2013-003396.

2012

Whear R, Thompson-Coon J, Boddy K, Papworth H, Frier J, Stein K. Establishing local priorities for a health research agenda. Health Expectations. 2012. doi: 10.1111/hex.12029.

Stewart R, Liabo K. Involvement in research without compromising research quality. Journal of Health Services Research & Policy 2012; 17 (4):248-51 http://hsr.sagepub.com/content/17/4/248.full

Uhm S, Liabo K, Stewart R, Rees R, Oliver S. Patient and public perspectives shaping scientific and medical research: panels for data, discussions and decisions. Journal of Patient Intelligence 2012; 4:1-10. http://www.vibis.dk/sites/vibis.dk/files/u148/pi-17835-patient-and-public-perspectives-shaping-scientific-and-medic_011312.pdf

Liabo K (2013) Service user involvement in research: Collaborating on a systematic review with young people who have experience of being in care. PhD thesis. London: Institute of Education

Gibson A, Britten N, Lynch J. Theoretical Directions for an Emancipatory Concept of Patient and Public Involvement. Health 2012; doi: 10.1177/1363459312438563 [You may require a subscription to access this article] [link to poster]

2011

Gibson A, Lewando-Hundt G, Blaxter L. Weak and Strong Publics: Drawing on Nancy Fraser to Explore Parental Participation in Neonatal Networks. Health Expectations 2011; doi: 10.1111/j.1369-7625.2011.00735.x

V Edwards, K Wyatt, S Logan, N Britten (2011). Consulting parents about the design of a randomised controlled trial of osteopathy for children with cerebral palsy. Health Expectations; 14: 429-438.

Wyatt K, V Edwards, L Franck, N Britten, S Creanor, A Maddick, S Logan (2011). Cranial osteopathy for children with cerebral palsy: a randomised controlled trial. Archives of Disease in Childhood; 96: 505-512.

Pre-2010

Curtis K, Liabo K, Roberts H, Barker M. Consulted but not heard: A qualitative study of young people’s views of their local health service. Health Expectations 2004;7 (2):149-56 http://onlinelibrary.wiley.com/doi/10.1111/j.1369-7625.2004.00265.x/full

 

Book Chapters

Purtell R, and Gibson A, (2012) How to make health and social care research radical and really, really useful. Book chapter in Long-term conditions: challenges in health and social care (editors Heller T.D, and Lloyd C.) Sage, London, pp69-79.

Staniszewska, S., Mockford, C., Gibson, A,. Herron-Marx, S., and Putz, P. (2012) Moving forward: Understanding the negative impacts of patient and public involvement in health service planning, development and evaluation. Book chapter in Critical perspectives on user involvement. (eds P Cotterill and Barnes M) Policy Press, Bristol, pp129-141

 

Other

Maguire K., Jones E., Williams-Yesson B., Stevens S.(2014) Valuing patient and public involvement in research. Nursing Times; 110: 45, 22-23.

Maguire K (2014) Putting the horse before the cart: an agenda for public engagement. INVOLVE Autumn 2014 Newsletter.

Upcoming Events

Nov
23

PPI Advice Clinic

The University of Exeter, St Luke's campus, South Cloisters

Whatever your query, from finding out more about Patient and Public Involvement to creating a PPI...
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Nov
23

Searching and Review Clinic

The University of Exeter, St Luke's campus, South Cloisters (Room 2.35)

These clinics have been set up to help the PenCLAHRC Evidence Synthesis Team to manage and respond...
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Calendar

News

New Study Underpins the Future of Person Centred Care

15 November 2017

Health provision is moving away from disease-based models to person centred delivery. This study addresses...
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Care Under Pressure

10 November 2017

The National Health Service (NHS) needs healthy, motivated doctors to provide high quality care for...
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Family praise for project to reduce loneliness in care homes

06 November 2017

A family whose mother could not speak or hear has praised a project which helped...
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News

Research Projects

Care Under Pressure

Theme: Mental Health & Dementia

Realist review of interventions to tackle healthcare professionals’ mental ill health and its impacts on...
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PenCHORD: Evaluation of the PenCHORD Health Service Modelling Associates programme (EmMA)

Theme: Evidence for Policy and Practice

This evaluation (EmMA) provides an independent and qualitative review of the first iteration of the...
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Research Projects