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Public and Patient Involvement Resources

The Public and Patient Involvement team have been running "PPI Advice Clinics" for a few years now, and many of the same questions are asked each time. We have gathered together some of our favourite resources on this page to provide some initial support to anyone wanting to find out more about how to 'do PPI', from why it is important to how to cost out involvement in your grant application.

If you know of any resources that have been helpful to you, why not let the PPI team know so that they can be added here to help others? Contact the team on: PIExeter @ exeter.ac.uk

Getting started

Finance

Meetings and workshops

Communication

Recruitment

Getting started

If you are involving people in your research for the first time, then the Guides in this section are a good place to start your reading.

Of course, the best place to start is on the INVOLVE website, set up by the NIHR to support research and involvement in research.

NIHR CLAHRC Oxford "Guide for researchers working with Patient and Public Involvement (PPI) Contributors" was co-produced by researchers and 'PPI Contributors' to help get new researchers up to speed.

We have created a brief guide, collecting together some of the accumulated wisdom of the team - a mini-guide to "Patient and Public Involvement for Researchers"

Finance

This can be one of the hardest aspects of planning for involvement - how much do you pay people? How do you effectively budget for invovlement in a three-year project?

Our own in-CLAHRC involvement group - PenPIG - helped us to write a payment policy for the CLAHRC, which is a good place to start.

INVOLVE also have a payment and budgeting calculator (although it is more complex than it needs to be) and a series of resources and articles to help steer you through this topic.

This example of a simple budget for a grant application demonstrates the sort of costs you may need to consider when planning your involvement.

Meetings and workshops

If you have never involved someone from the public or a patient in your work before, it may be that you need some help with the practicalities - thinking about catering, how to put an agenda together, how to get output from a workshop etc. We are gathering resources in this section to help with all of the practicalities of involvement.

This booklet on facilitation techniques is a good place to start thinking about activities to use in your workshop to work with your involvees.

Communication

One aspect of research where involvement is a growth field is in research communications. Invovling patients and the public in disseminating your research allows you to access 'grassroots' audiences that you otherwise may not know about and is appreciated by funding bodies.

This practical guide was co-created by a NIHR-funded project, the people they involved and Sense about Science (an independant charity advocating for the public understanding of science) to help you communicate wiht a lay audience in 5 Easy Steps....

Recruitment

Sooner or later you will want to advertise your workshop or project, and possibly even recruit lay people to a steering committee. Below are some example posters and leaflets advertising events, and a 'role description' that you can adapt and share with lay people you might recruit to a role within your research.

Example recruitment poster for a workshop

Example role description for a lay member of project steering committee

 

 

Upcoming Events

Jan
29

Seminar on Open Access by...

South Cloisters 3.06, St Luke’s campus with video conferencing link to MR8, John Bull Building, Plymouth and F083 in Truro

  A life with no Windows. A 12 month exploration into living in an Open Science...
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Feb
06

PPI Advice Clinic

The University of Exeter, St Luke's campus, South Cloisters

Patient and Public Involvement Clinic What? These clinics have been set up to help the PenCLAHRC PPI Team manage and respond...
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Calendar

News

Partner In Focus - South West Academic Health Science Network

17 January 2018

As a partnership of NHS Trusts across Devon, Cornwall and Somerset, plus the Universities of...
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Members of PenCHORD team makes switch to Open Source working

15 December 2017

Members of PenCLAHRC's operational research team, PenCHORD, have been working towards transferring their work to Free Open Source Software (FOSS). Dr...
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Using Implementation Science to drive health care change: The ASPIC project

14 December 2017

Understanding how to put effective health care into practice is an important part of the...
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Research Projects

Parent-to-Parent Support Interventions for Parents of Babies Cared for in a Neonatal unit (PaReNt)

Theme: Mental Health & Dementia

A systematic review of qualitative and quantitative evidence of parent to parent support interventions for...
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Improving the Experience of Care for People with Dementia in Hospital (ACEDEM)

Theme: Mental Health & Dementia

Can we improve the experience of care for people with dementia in hospital? A synthesis...
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Research Projects