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Staff Profile

Dr Astrid Janssens

Senior Research Fellow

Kath Maguire

My research covers the understanding and support of health and social services in delivering efficient and effective care for children and young people with disabilities, mental or physical. It has always been important to involve service users (children, young people and their carers) in my research using participatory designs or methods (e.g. Action research). Patient and public involvement is the tenet of PenCRU and thus a methodological a topic in its own; how to involve children and young people and their parents in each step of the research process. Currently, I’m working on the CHUMS project, an NIHR funded project, which will inform the NHS outcomes framework: what outcomes of NHS care should be measured for children with neurodisability? This work combines an exhaustive systematic review with the output from a qualitative study among children and young people with neurodisability and their parents and a Delphi survey with over 250 NHS health care professionals to determine which outcomes of NHS care should be measured for this population.

Upcoming Events

Nov
16

Making Sense of Health Research...

Buckfast Abbey Conference Centre, TQ11 0EG

Please note that the conference is now fully booked. If you would like to be...
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Nov
22

Searching and Review Clinic

ITTC Building, Plymouth (Cafe area: please go to Reception on arrival where a member of the team will meet you)

These clinics have been set up to help the PenCLAHRC Evidence Synthesis Team to manage and respond...
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Calendar

News

£2.7m study to focus on dementia support workers in primary care

25 October 2018

A new study is investigating how to introduce dementia support workers into GP surgeries, with...
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‘Floundering without support’ – a dementia carer’s story on why new research is vital

25 October 2018

Dorothy Tudor has cared for her partner Bob since he was diagnosed with dementia seven...
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What is the recipe for a successful relationship and how should we teach school children?

22 October 2018

The Personal, Social, Health and Economic (PSHE) Education Association recommend that school children are taught about sex and relationships during their schooling years. Despite...
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News

Research Projects

D-PACT: Dementia - Person Aligned Care Team

Theme: Mental Health & Dementia

The Dementia – PACT (D-PACT) programme is a five-year project, funded by a National Institute...
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PenCHORD - Optimising the location of urgent care sites in Cornwall

Theme: PenCHORD

This project aimed to assess the optimal number and location of sites for patients to...
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Research Projects