- Research and Projects
- Get Involved
My research covers the understanding and support of health and social services in delivering efficient and effective care for children and young people with disabilities, mental or physical. It has always been important to involve service users (children, young people and their carers) in my research using participatory designs or methods (e.g. Action research). Patient and public involvement is the tenet of PenCRU and thus a methodological a topic in its own; how to involve children and young people and their parents in each step of the research process. Currently, I’m working on the CHUMS project, an NIHR funded project, which will inform the NHS outcomes framework: what outcomes of NHS care should be measured for children with neurodisability? This work combines an exhaustive systematic review with the output from a qualitative study among children and young people with neurodisability and their parents and a Delphi survey with over 250 NHS health care professionals to determine which outcomes of NHS care should be measured for this population.
Contact by phone
University of Exeter
Areas of expertise
Child Mental Health, Research Methods and Designs, Qualitative Methods and Data Collection
25 October 2018
A new study is investigating how to introduce dementia support
workers into GP surgeries, with...
25 October 2018
Dorothy Tudor has cared for her partner Bob since he was diagnosed
with dementia seven...
22 October 2018
The Personal, Social, Health
and Economic (PSHE) Education Association recommend that
school children are taught about sex and relationships during
their schooling years. Despite...
Theme: Mental Health & Dementia
The Dementia – PACT (D-PACT) programme is a five-year project,
funded by a National Institute...
This project aimed to assess the optimal number and location of
sites for patients to...