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Staff Profile

Dr Astrid Janssens

Senior Research Fellow

Kath Maguire

My research covers the understanding and support of health and social services in delivering efficient and effective care for children and young people with disabilities, mental or physical. It has always been important to involve service users (children, young people and their carers) in my research using participatory designs or methods (e.g. Action research). Patient and public involvement is the tenet of PenCRU and thus a methodological a topic in its own; how to involve children and young people and their parents in each step of the research process. Currently, I’m working on the CHUMS project, an NIHR funded project, which will inform the NHS outcomes framework: what outcomes of NHS care should be measured for children with neurodisability? This work combines an exhaustive systematic review with the output from a qualitative study among children and young people with neurodisability and their parents and a Delphi survey with over 250 NHS health care professionals to determine which outcomes of NHS care should be measured for this population.

Upcoming Events

Feb
05

PPI Advice Clinic

Exeter (South Cloisters, St Luke’s)

Do you need to involve service users in your work? Whatever your query, from finding out...
More information

Mar
05

PPI Advice Clinic

Exeter (South Cloisters, St Luke’s)

Do you need to involve service users in your work? Whatever your query, from finding out...
More information

Calendar

News

Helping ‘underperforming’ doctors get back up to scratch – review to explore medical remediation

15 January 2019

Estimates suggest that 6% of doctors in the hospital workforce may be performing below the...
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Study finds that probiotics can help improve pain experienced by children with recurrent abdominal pain

10 January 2019

PenCLAHRC researchers have published further findings from their review of the use of probiotics for...
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Research instrumental in securing £8 million funding for new hospital mental health ward

09 January 2019

Researchers who specialise in optimising health services worked with health trusts to produce evidence that...
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News

Research Projects

ADAPT: Accelerated Design and Programme Testing

Theme: Evidence for Policy and Practice

The research involves adapting aspects of Family Nurse Partnership, an evidence-based programme for young mothers...
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Early Learning Communities

Theme: Evidence for Policy and Practice

The research involves a review of the international evidence on how to promote the school...
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Research Projects