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Patient and Public Involvement in Research

Why Public Involvement in Research?

The experience that researchers and clinicians have of healthcare services often comes from a specialised and expert point of view. Patients and members of the public provide a different way of looking at things that can ground the discussion in practical experience. The lay perspective can make clear things that are so obvious the professionals have stopped noticing them and ask ‘naive’ but important questions that the experts are too well trained to think of.

Involving people in health and social care research is about giving the people who are meant to benefit from this research a say in shaping the research agenda. It requires lay people to be involved on an equal basis to academics and health care professionals. This includes not just participating in research that has been initiated by academics, but also in shifting the power balance so that users and carers can initiate research and work collaboratively with academics. 

The Patient and Public Involvement Group (PenPIG) work alongside the PPI team to help maximise the benefits of health research:

 

 

 

Who We Are

The PPI Team are Kate BoddyKade Beeson, Kristin Liabo and Helen Burchmore, led by Professor Nicky Britten. To find out more about us, click here.

 

Who is PenPIG? 

PenPIG (Peninsula Public Involvement Group) is a user led advisory group. It is made up of members of the public, service users and carers. Its aim is to advise PenCLAHRC on all aspects of user involvement. This group has representation on PenCLAHRC’s Management Board and on the stakeholder group which prioritises research projects.

Members of PenPIG have also been involved in a wide range of activities related to the running and work of PenCLAHRC. These include participation in the recruitment of new staff, the development of PenCLAHRC’s  on-line research question generation tool, participation in the teaching of medical students, the writing of applications for research funding, the development of our internal evaluation of PPI activity, advising and supporting user involvement in on-going research projects and presenting at conferences. 

Click here to visit the PenPIG webpage.

 

How can I get involved? 

To get involved in research, attend workshops, or join PenPIG, please send an email to the team at PIExeter@exeter.ac.uk. Your contact information will be kept private and will not be shared with anyone outside of PenCLAHRC. 

 

How can I get help with PPI in my research?

Although ultimately we are here to support PenCLAHRC projects, we may be able to give advice to external researchers. We hold free PPI Advice Clinics every month for researchers in Exeter and Plymouth. For the next available clinic in your area, please see the PenCLAHRC events page. You can also take a look at our resources page.

Resources and Information

We have produced a range of information and resources that you may find helpful. Please visit our resources page and our useful links page to find out more.

PPI Strategy

Strategic plan for the PenCLAHRC Patient and Public Involvement team including our background, aims, and priorities. Click here to view the brief in full as a PDF.   

Publications

The PPI team and PenPIG have written a number of academic publications based on their work. Click here to find a full list of papers.

PPI Conference 2013

In 2013 we held our very first PPI conference, entitled 'New Developments in Public Involvement Research'. Please visit the conference page to find presentations, photos and information about the conference.

 

Contact Us

You can contact us by email at PIExeter@exeter.ac.uk.

We are also on Twitter. You can follow us via Tweets by @PenCLAHRC_PPI

 

Tweets by @PenCLAHRC_PPI

Special thanks to INVOLVE for letting us use their video from the 2012 INVOLVE Conference

 

Upcoming Events

Aug
31

Making Sense of Evidence and...

John Bull Building - Plymouth

Workshop: Making Sense of Evidence & Focusing Uncertainties On the 31st August 2016 we are running...
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Sep
01

The 9th International Congress of...

XFi Building, Streatham Campus, University of Exeter

Sustainable Psychotherapies for the 21st Century Thursday 1st and Friday 2nd September Pre-congress workshop Wednesday 31st August This...
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Calendar

News

Job opportunity - Communications Assistant

11 August 2016

We are seeking to appoint a Communications Assistant who will make a significant contribution to...
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Job opportunity - Postdoctoral Research Fellow in Health Services Research

11 August 2016

We are looking to recruit a Postdoctoral Research Fellow to support the work of PenCLAHRC,...
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High praise for PenCHORD project

10 August 2016

PenCLAHRC’s operational research team, PenCHORD, have recently completed a project, which looks at the mapping...
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News

Research Projects

ESSEnCE: amalgamating marginal gains in ESSEntial Nursing CarE

Theme: Evidence for Policy and Practice

PenCLAHRC researchers are supporting colleagues in the Medical School on an NIHR Programme Development Grant...
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PenCHORD - What are the factors that most influence demand for ambulances in South West England?

Theme: Evidence for Policy and Practice

This project sought to understand the factors that contribute most to growing levels of demand...
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Research Projects