Skip to main content

Patient and Public Involvement in Research

Why PPI? I The PPI Team I Resources and Support I Publications I PPI News I Who is PenPIG? I Getting Involved I Contact us

Why Public Involvement in Research?

The experience that researchers and clinicians have of healthcare services often comes from a specialised and expert point of view. Patients and members of the public provide a different way of looking at things that can ground the discussion in practical experience. The lay perspective can make clear things that are so obvious the professionals have stopped noticing them and ask ‘naive’ but important questions that the experts are too well trained to think of.

Involving people in health and social care research is about giving the people who are meant to benefit from this research a say in shaping the research agenda. It requires lay people to be involved on an equal basis to academics and health care professionals. This includes not just participating in research that has been initiated by academics, but also in shifting the power balance so that users and carers can initiate research and work collaboratively with academics. 

The Patient and Public Involvement Group (PenPIG) work alongside the PPI team to help maximise the benefits of health research. Download our flyer (PDF) for a brief introduction to the PPI team, what we can do for you and how we work with PenPIG.

 

Who We Are

The PPI Team are Kate BoddyKristin Liabo, Helen Burchmore, Emma Cockcroft and Tanya Hynd, led by Professor Nicky Britten. To find out more about us, click on our names!

 

Resources and support for your research

Although ultimately the PPI team are here to support PenCLAHRC projects, we may be able to give advice to external researchers. We hold free PPI Advice Clinics every month for researchers in Exeter and Plymouth. For the next available clinic in your area, please see the PenCLAHRC events page.

Since the start of PenCLAHRC in 2008, the PPI team have produced a range of information and resources that you may find helpful. Please visit our Resources page and our Useful Links page to find out more. These resources are in the process of being updated and added to - if you have a request for information, templates or worked examples then please let us know so we can include it in our refresh (email us by using the link below).

 

Publications

The PPI team and PenPIG have written a number of academic publications based on their work. Find a full list of papers on the PPI Publications page.

PPI Strategy

UPDATE: The Strategic Plan for the PenCLAHRC Patient and Public Involvement team including our background, aims, and priorities. We have recently updated out strategy to reflect ongoing work (April 2017).

PPI Annual Report

Each year we write a summary of the public and patient involvement activities that have been carried out in or with the PenCLAHRC, which is then added to the CLAHRC's Annual Report. You can read the PPI Annual Report for 2016 - we are currenty working on the version for this year, and will share it with you later this year.

If you are interested in reading more about what other CLAHRCs are up to with regard to their Public and Patient Involvement, then the NIHR has collated all of the Annual reports from last year into one NIHR CLAHRC PPI Annual Report for 2015-16 that you can download and read.

PPI Conference 2013

In 2013 we held our very first PPI conference, entitled 'New Developments in Public Involvement Research'. Please visit the Conference page to find presentations, photos and information about the conference.

 

News

For a round-up of what the PPI team and PenPIG have been up to, including recent project work, new publications, visits to conferences and events - and calls for you to get involved in our work too - please visit our News page.

 

Who are PenPIG?

PenPIG (Peninsula Public Involvement Group) is a user-led advisory group. It is made up of members of the public, service users and carers. Its aim is to advise PenCLAHRC on all aspects of user involvement. This group has representation on PenCLAHRC’s Management Board and on the stakeholder group which prioritises research projects.

Members of PenPIG have also been involved in a wide range of activities related to the running and work of PenCLAHRC. These include participation in the recruitment of new staff, the development of PenCLAHRC’s  on-line research question generation tool, participation in the teaching of medical students, the writing of applications for research funding, the development of our internal evaluation of PPI activity, advising and supporting user involvement in on-going research projects and presenting at conferences. 

Visit the PenPIG webpage.

PenCLAHRC also support two other patient / carer / public groups who act as critical friends to the researchers working on healthcare research - you can find out more on the PenPIG page.

 

How can I get involved? 

To get involved in our research, attend workshops, or join PenPIG, please contact the team via email. Your contact information will be kept private and will not be shared with anyone outside of PenCLAHRC

Currently PenPIG does not have any free spaces, but we can add your name to a waiting list if you would like to be contacted when spaces become free. Or you can look at our PPI News page to see a list of the current 'Calls for Involvement' with local healthcare-related organisations

 

Contact Us

You can contact us by Email

We are also on Twitter. You can follow us via Tweets by @PenCLAHRC_PPI

Special thanks to INVOLVE for letting us use their video from the 2012 INVOLVE Conference

Tweets by @PenCLAHRC_PPI

Upcoming Events

May
31

Health Economics Workshop with Antonieta...

Baring Court 202 - St Lukes Campus - University of Exeter

Health Economics Workshop - In this one day workshop, participants will be introduced to key principles...
More information

Jun
07

PPI Advice Clinic

Plymouth, ITTC Building (PL6 8BX)

Whatever your query, from finding out more about Patient and Public Involvement to creating a PPI...
More information

Calendar

News

PenCLAHRC joins EU network for cost containment and improved quality of healthcare

25 May 2017

The escalating cost of healthcare is a problem common to all EU countries and national...
Read more

Self-harm in schools collaboration reveals need for new training and interventions

24 May 2017

A GW4-funded collaboration between researchers from PenCLAHRC and GW4 universities has revealed gaps in provision...
Read more

PenCLAHRC dementia research makes the news

23 May 2017

A PenCLAHRC project showing that eating a Mediterranean diet may help reduce the risk of dementia has...
Read more

News

Research Projects

PenCHORD - Torbay and South Devon stroke care

Theme: Evidence for Policy and Practice

PenCHORD worked with Torbay and South Devon NHS Foundation Trust to understand the resources needed...
Read more

PenCHORD - STEMI: Appropriate treatment for ST-elevation heart attacks

Theme: Evidence for Policy and Practice

Could thrombolysis treatment from paramedics before being taken to hospital lead to better outcomes for...
Read more

Research Projects