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Patient and Public Involvement in Research

Why Public Involvement in Research?

The experience that researchers and clinicians have of healthcare services often comes from a specialised and expert point of view. Patients and members of the public provide a different way of looking at things that can ground the discussion in practical experience. The lay perspective can make clear things that are so obvious the professionals have stopped noticing them and ask ‘naive’ but important questions that the experts are too well trained to think of.

Involving people in health and social care research is about giving the people who are meant to benefit from this research a say in shaping the research agenda. It requires lay people to be involved on an equal basis to academics and health care professionals. This includes not just participating in research that has been initiated by academics, but also in shifting the power balance so that users and carers can initiate research and work collaboratively with academics. 

The Patient and Public Involvement Group (PenPIG) work alongside the PPI team to help maximise the benefits of health research:

 

 

 

Who We Are

The PPI Team are Kate Boddy, Kath Maguire, Kade Beeson, Kristin Liabo and Helen Burchmore, led by Professor Nicky Britten. To find out more about us, click here.

 

Who is PenPIG? 

PenPIG (Peninsula Public Involvement Group) is a user led advisory group. It is made up of members of the public, service users and carers. Its aim is to advise PenCLAHRC on all aspects of user involvement. This group has representation on PenCLAHRC’s Management Board and on the stakeholder group which prioritises research projects.

Members of PenPIG have also been involved in a wide range of activities related to the running and work of PenCLAHRC. These include participation in the recruitment of new staff, the development of PenCLAHRC’s  on-line research question generation tool, participation in the teaching of medical students, the writing of applications for research funding, the development of our internal evaluation of PPI activity, advising and supporting user involvement in on-going research projects and presenting at conferences. 

Click here to visit the PenPIG webpage.

 

How can I get involved? 

To get involved in research, attend workshops, or join PenPIG, please send an email to the team at PIExeter@exeter.ac.uk. Your contact information will be kept private and will not be shared with anyone outside of PenCLAHRC. 

 

How can I get help with PPI in my research?

Although ultimately we are here to support PenCLAHRC projects, we may be able to give advice to external researchers. We hold free PPI Advice Clinics every month for researchers in Exeter and Plymouth. For the next available clinic in your area, please see the PenCLAHRC events page. You can also take a look at our resources page.

Resources and Information

We have produced a range of information and resources that you may find helpful. Please visit our resources page and our useful links page to find out more.

PPI Strategy

Strategic plan for the PenCLAHRC Patient and Public Involvement team including our background, aims, and priorities. Click here to view the brief in full as a PDF.   

Publications

The PPI team and PenPIG have written a number of academic publications based on their work. Click here to find a full list of papers.

PPI Conference 2013

In 2013 we held our very first PPI conference, entitled 'New Developments in Public Involvement Research'. Please visit the conference page to find presentations, photos and information about the conference.

 

Contact Us

You can contact us by email at PIExeter@exeter.ac.uk.

We are also on Twitter. You can follow us via Tweets by @PenCLAHRC_PPI

 

Special thanks to INVOLVE for letting us use their video from the 2012 INVOLVE Conference

 

Upcoming Events

Jun
27

PPI Advice Clinic Plymouth

Plymouth University (Venue TBC)

Do you need to involve service users in your work? Whatever your query, from finding out...
More information

Jun
28

PenCHORD Training - Module 2

The Knowledge Spa, Royal Cornwall Hospital, Truro

MODULE 2 : Geographic Modelling Geographic modelling techniques provide vital decision support when deciding where to...
More information

Calendar

News

Job opportunity - Research Assistant

21 June 2016

This is a new post within the Clinical Trials and Populations Studies research group within...
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PenCLAHRC Research Fellow wins Images of Research competition

20 June 2016

PenCLAHRC Research Fellow, Kate Boddy from the Public and Patient Involvement team, has won this...
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Nominations now open for the Devon Venus Awards

10 June 2016

Now in its third year, the Devon Venus Awards recognises, celebrates and rewards local inspirational...
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News

Research Projects

The Patient Safety Collaborative Evaluation Study (PiSCES)

Theme: Evidence for Policy and Practice

This project aims to evaluate progress to date on the development of Patient Safety Collaboratives.
Read more

PenCHORD - HepB: Optimising the management of chronic hepatitis B in children and young people

Theme: Evidence for Policy and Practice

PenCHORD will conduct the cost-effectiveness component of an NIHR RfPB funded project, led by Queen...
Read more

Research Projects