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Patient and Public Involvement in Research

Other pages in this section: Get involved in research | Resources for researchers | PenPIG

On this page: Who we are | Why PPI? I Get involved | Resources and support I PPI Publications I Contact us

What we do

  • The Patient and Public Involvement (PPI) team support PenCLAHRC researchers and students to involve the public in their research projects.

  • We conduct and publish research on how best to involve members of the public in health policy, research and practice. 

  • Through teaching, workshops and creating resources, we help members of the public to develop their own research questions. 

  • Our Patient and Public Involvement Group (PenPIG) work alongside the PPI team to help maximise the benefits of health research. 

Download our flyer (PDF) for a brief introduction to the PPI team, what we can do for you and how we work with PenPIG. You can also read our UPDATED Strategic Plan for 2017-2018 including our background, aims, and priorities.

Who we are

The PPI Team are Kate BoddyKristin LiaboHelen BurchmoreEmma Cockcroft and Tanya Hynd, led by Professor Nicky Britten. To find out more about us, click on our names!

Why involve the public in research?

The experience that researchers and clinicians have of healthcare services often comes from a specialised and expert point of view. Patients and members of the public provide a different way of looking at things that can ground the discussion in practical experience. The lay perspective can make clear things that are so obvious the professionals have stopped noticing them and ask ‘naive’ but important questions that the experts are too well trained to think of.

Involving people in health and social care research is about giving the people who are meant to benefit from this research a say in shaping the research agenda. It requires lay people to be involved on an equal basis to academics and health care professionals. This includes not just participating in research that has been initiated by academics, but also in shifting the power balance so that users and carers can initiate research and work collaboratively with academics. 

How can I get involved? 

To get involved in our research, attend workshops, or join PenPIG, please contact the team via email. Your contact information will be kept private and will not be shared with anyone outside of PenCLAHRC.

Visit the Get involved page to see a list of current 'Calls for Involvement' with local healthcare-related organisations. 

Currently PenPIG does not have any free spaces, but we can add your name to a waiting list if you would like to be contacted when spaces become free. 

Resources and support for researchers

Although ultimately the PPI team are here to support PenCLAHRC projects, we may be able to give advice to external researchers. We hold free PPI Advice Clinics every month for researchers in Exeter and Plymouth. For the next available clinic in your area, please see the PenCLAHRC events page.

We have produced a range of information and resources that you may find helpful. Please visit our Resources page to find out more. If you have a request for information, templates or worked examples then please email us and let us know.

Publications

The PPI team and PenPIG have written a number of academic publications based on their work. Find a full list of papers on the PPI Publications page. 

Contact Us

Email the PPI team  Follow us on Twitter

Upcoming Events

Jan
29

Seminar on Open Access by...

South Cloisters 3.06, St Luke’s campus with video conferencing link to MR8, John Bull Building, Plymouth and F083 in Truro

  A life with no Windows. A 12 month exploration into living in an Open Science...
More information

Feb
06

PPI Advice Clinic

The University of Exeter, St Luke's campus, South Cloisters

Patient and Public Involvement Clinic What? These clinics have been set up to help the PenCLAHRC PPI Team manage and respond...
More information

Calendar

News

Partner In Focus - South West Academic Health Science Network

17 January 2018

As a partnership of NHS Trusts across Devon, Cornwall and Somerset, plus the Universities of...
Read more

Members of PenCHORD team makes switch to Open Source working

15 December 2017

Members of PenCLAHRC's operational research team, PenCHORD, have been working towards transferring their work to Free Open Source Software (FOSS). Dr...
Read more

Using Implementation Science to drive health care change: The ASPIC project

14 December 2017

Understanding how to put effective health care into practice is an important part of the...
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News

Research Projects

Parent-to-Parent Support Interventions for Parents of Babies Cared for in a Neonatal unit (PaReNt)

Theme: Mental Health & Dementia

A systematic review of qualitative and quantitative evidence of parent to parent support interventions for...
Read more

Improving the Experience of Care for People with Dementia in Hospital (ACEDEM)

Theme: Mental Health & Dementia

Can we improve the experience of care for people with dementia in hospital? A synthesis...
Read more

Research Projects