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Patient and Public Involvement in Research

Other pages in this section: Get involved in research | Resources for researchers | PenPIG

On this page: Who we are | Why PPI? I Get involved | Resources and support I PPI Publications I Contact us

What we do

  • The Patient and Public Involvement (PPI) team support PenCLAHRC researchers and students to involve the public in their research projects.

  • We conduct and publish research on how best to involve members of the public in health policy, research and practice. 

  • Through teaching, workshops and creating resources, we help members of the public to develop their own research questions. 

  • Our Patient and Public Involvement Group (PenPIG) work alongside the PPI team to help maximise the benefits of health research. 

We have several projects underway that involve parents with young children. We have been meeting at children’s centres and other child-friendly places so that parents can attend research meetings and bring their children at the same time. Our discussions have taken place surrounded by babies just few weeks old and lively pre-school children enjoying soft-play and toys.

One of these projects - PaReNt - seeks to explore the role of parent to parent support for parents whose babies are in a neonatal unit. In this photo researchers and involved parents are discussing outcome measures for the project:

Download our flyer (PDF) for a brief introduction to the PPI team, what we can do for you and how we work with PenPIG. You can also read our UPDATED Strategic Plan for 2017-2018 including our background, aims, and priorities.

Who we are

The PPI Team are Kate BoddyKristin LiaboEmma Cockcroft and Tanya Hynd, led by Professor Nicky Britten. To find out more about us, click on our names!

Why involve the public in research?

The experience that researchers and clinicians have of healthcare services often comes from a specialised and expert point of view. Patients and members of the public provide a different way of looking at things that can ground the discussion in practical experience. The lay perspective can make clear things that are so obvious the professionals have stopped noticing them and ask ‘naive’ but important questions that the experts are too well trained to think of.

Involving people in health and social care research is about giving the people who are meant to benefit from this research a say in shaping the research agenda. It requires lay people to be involved on an equal basis to academics and health care professionals. This includes not just participating in research that has been initiated by academics, but also in shifting the power balance so that users and carers can initiate research and work collaboratively with academics. 

How can I get involved? 

To get involved in our research, attend workshops, or join PenPIG, please contact the team via email. Your contact information will be kept private and will not be shared with anyone outside of PenCLAHRC.

Visit the Get involved page to see a list of current 'Calls for Involvement' with local healthcare-related organisations. 

Currently PenPIG does not have any free spaces, but we can add your name to a waiting list if you would like to be contacted when spaces become free. 

Resources and support for researchers

Although ultimately the PPI team are here to support PenCLAHRC projects, we may be able to give advice to external researchers. We hold free PPI Advice Clinics every month for researchers in Exeter. For the next available clinic in your area, please see the PenCLAHRC events page and search the months to find the next available PPI Advice Clinic.

We have produced a range of information and resources that you may find helpful. Please visit our Resources page to find out more. If you have a request for information, templates or worked examples then please email us and let us know.

Publications

The PPI team and PenPIG have written a number of academic publications based on their work. Find a full list of papers on the PPI Publications page. 

Contact Us

Email the PPI team  Follow us on Twitter

Upcoming Events

Sep
24

Searching and Review Clinic

South Cloisters 2.35, St Luke's Campus, University of Exeter

These clinics have been set up to help the PenCLAHRC Evidence Synthesis Team to manage and respond...
More information

Sep
25

Making Sense of Evidence: One...

The Canalside, Bridgwater

PenCLAHRC Free One Day Workshop Making Sense of Evidence - discover how to use evidence to...
More information

Calendar

News

Research shows parental involvement plays key role in children's academic attainment

18 September 2019

New research has shown how parental engagement has a positive effect on a child’s academic...
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Management Board Chair appointed at start of new era of Health Research in the Southwest

28 August 2019

Dr Barbara Vann has been appointed chair of the NIHR Applied Research Collaboration (ARC) South...
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Job Opportunity: Senior Research Fellow PenARC

15 August 2019

We have an exciting opportunity for an experienced Senior Research Fellow with expertise in qualitative...
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News

Research Projects

Understanding stakeholders’ perspectives on implementing deprescribing in care homes (STOPPING)

Theme: CLAHRC - Person-Centred Care

We have been awarded funding from the National Institute for Health Research (NIHR) to develop...
Read more

SAMueL – Stroke Audit Machine Learning

Theme: PenCHORD

This study aims to develop a tool for doctors to help them review and improve...
Read more

Research Projects