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Patient and Public Involvement in Research

Why Public Involvement in Research?

The experience that researchers and clinicians have of healthcare services often comes from a specialised and expert point of view. Patients and members of the public provide a different way of looking at things that can ground the discussion in practical experience. The lay perspective can make clear things that are so obvious the professionals have stopped noticing them and ask ‘naive’ but important questions that the experts are too well trained to think of.

Involving people in health and social care research is about giving the people who are meant to benefit from this research a say in shaping the research agenda. It requires lay people to be involved on an equal basis to academics and health care professionals. This includes not just participating in research that has been initiated by academics, but also in shifting the power balance so that users and carers can initiate research and work collaboratively with academics. 

The Patient and Public Involvement Group (PenPIG) work alongside the PPI team to help maximise the benefits of health research.

Who We Are

The PPI Team are Kate BoddyKristin Liabo, Helen Burchmore, Emma Cockcroft and Tanya Hynd, led by Professor Nicky Britten. To find out more about us, visit the 'Meet the Team' page.

How can I get help with PPI in my research?

Although ultimately we are here to support PenCLAHRC projects, we may be able to give advice to external researchers. We hold free PPI Advice Clinics every month for researchers in Exeter and Plymouth. For the next available clinic in your area, please see the PenCLAHRC events page. You can also take a look at our Resources page.

Resources and Information

We have produced a range of information and resources that you may find helpful. Please visit our Resources page and our Useful Links page to find out more.

PPI Strategy

The Strategic Plan for the PenCLAHRC Patient and Public Involvement team including our background, aims, and priorities.

Publications

The PPI team and PenPIG have written a number of academic publications based on their work. Find a full list of papers on the PPI Publications page.

PPI Conference 2013

In 2013 we held our very first PPI conference, entitled 'New Developments in Public Involvement Research'. Please visit the Conference page to find presentations, photos and information about the conference.

News

For a round-up of what the PPI team and PenPIG have been up to, including recent project work, new publications, visits to conferences and events - and calls for you to get involved in our work too - please visit our News page.

Who is PenPIG? 

PenPIG (Peninsula Public Involvement Group) is a user-led advisory group. It is made up of members of the public, service users and carers. Its aim is to advise PenCLAHRC on all aspects of user involvement. This group has representation on PenCLAHRC’s Management Board and on the stakeholder group which prioritises research projects.

Members of PenPIG have also been involved in a wide range of activities related to the running and work of PenCLAHRC. These include participation in the recruitment of new staff, the development of PenCLAHRC’s  on-line research question generation tool, participation in the teaching of medical students, the writing of applications for research funding, the development of our internal evaluation of PPI activity, advising and supporting user involvement in on-going research projects and presenting at conferences. 

Visit the PenPIG webpage.

How can I get involved? 

To get involved in research, attend workshops, or join PenPIG, please contact the team via email. Your contact information will be kept private and will not be shared with anyone outside of PenCLAHRC. 

Contact Us

You can contact us by Email

We are also on Twitter. You can follow us via Tweets by @PenCLAHRC_PPI

Special thanks to INVOLVE for letting us use their video from the 2012 INVOLVE Conference

 

Tweets by PenCLAHRC_PPI

 

Upcoming Events

Dec
13

PPI Advice Clinic

The University of Exeter, St Luke's campus, South Cloisters room 2.17

Patient and Public Involvement Clinics What? These clinics have been set up to help the PenCLAHRC PPI Team...
More information

Jan
10

PPI Advice Clinic

The University of Exeter, St Luke's campus, South Cloisters room 2.17

Patient and Public Involvement Clinics What? These clinics have been set up to help the PenCLAHRC PPI Team...
More information

Calendar

News

New guidance aims to fill gaps in health service research

01 December 2016

PenCLAHRC’s Mary Hickson, Professor in Dietetics, has worked with the Association of UK University Hospitals’...
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Stroke Association funding for aphasia project

29 November 2016

A team of PenCLAHRC researchers have been awarded a project grant from the Stroke Association...
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PenCLAHRC appoints Mental Health and Dementia theme lead and deputy

29 November 2016

We are pleased to announce that Professor Chris Dickens, Chair of Psychological Medicine, and Senior...
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News

Research Projects

ExPERT - Exeter Policing, Evidence and Research Translation

Theme: Evidence for Policy and Practice

The ExPERT project is helping to build evidence-based practice into policing across Devon and Cornwall.
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MBCT-YP: Mindfulness-Based Cognitive Therapy to prevent relapse in young people

Theme: Mental Health & Dementia

Is mindfulness based cognitive behaviour therapy (MBCT) effective in maintaining recovery and relapse prevention among...
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Research Projects