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Patient and Public Involvement in Research

Why Public Involvement in Research?

The experience that researchers and clinicians have of healthcare services often comes from a specialised and expert point of view. Patients and members of the public provide a different way of looking at things that can ground the discussion in practical experience. The lay perspective can make clear things that are so obvious the professionals have stopped noticing them and ask ‘naive’ but important questions that the experts are too well trained to think of.

Involving people in health and social care research is about giving the people who are meant to benefit from this research a say in shaping the research agenda. It requires lay people to be involved on an equal basis to academics and health care professionals. This includes not just participating in research that has been initiated by academics, but also in shifting the power balance so that users and carers can initiate research and work collaboratively with academics. 

The Patient and Public Involvement Group (PenPIG) work alongside the PPI team to help maximise the benefits of health research. Download our flyer (PDF) for a brief introduction to the PPI team, what we can do for you and how we work with PenPIG.

Who We Are

The PPI Team are Kate BoddyKristin Liabo, Helen Burchmore, Emma Cockcroft and Tanya Hynd, led by Professor Nicky Britten. To find out more about us, visit the 'Meet the Team' page.

How can I get help with PPI in my research?

Although ultimately we are here to support PenCLAHRC projects, we may be able to give advice to external researchers. We hold free PPI Advice Clinics every month for researchers in Exeter and Plymouth. For the next available clinic in your area, please see the PenCLAHRC events page. You can also take a look at our Resources page.

Resources and Information

We have produced a range of information and resources that you may find helpful. Please visit our Resources page and our Useful Links page to find out more. These resources are in the process of being updated and added to - if you have a request for information, templates or worked examples then please let us know so we can include it in our refresh (email us by using the link below).

PPI Strategy

The Strategic Plan for the PenCLAHRC Patient and Public Involvement team including our background, aims, and priorities.


The PPI team and PenPIG have written a number of academic publications based on their work. Find a full list of papers on the PPI Publications page.

PPI Conference 2013

In 2013 we held our very first PPI conference, entitled 'New Developments in Public Involvement Research'. Please visit the Conference page to find presentations, photos and information about the conference.


For a round-up of what the PPI team and PenPIG have been up to, including recent project work, new publications, visits to conferences and events - and calls for you to get involved in our work too - please visit our News page.

Who is PenPIG? 

PenPIG (Peninsula Public Involvement Group) is a user-led advisory group. It is made up of members of the public, service users and carers. Its aim is to advise PenCLAHRC on all aspects of user involvement. This group has representation on PenCLAHRC’s Management Board and on the stakeholder group which prioritises research projects.

Members of PenPIG have also been involved in a wide range of activities related to the running and work of PenCLAHRC. These include participation in the recruitment of new staff, the development of PenCLAHRC’s  on-line research question generation tool, participation in the teaching of medical students, the writing of applications for research funding, the development of our internal evaluation of PPI activity, advising and supporting user involvement in on-going research projects and presenting at conferences. 

Visit the PenPIG webpage.

How can I get involved? 

To get involved in research, attend workshops, or join PenPIG, please contact the team via email. Your contact information will be kept private and will not be shared with anyone outside of PenCLAHRC. 

Contact Us

You can contact us by Email

We are also on Twitter. You can follow us via Tweets by @PenCLAHRC_PPI

Special thanks to INVOLVE for letting us use their video from the 2012 INVOLVE Conference


Tweets by @PenCLAHRC_PPI


Upcoming Events


Implementation Science 2.0 Show Me...

South Cloisters 3.06 (VC to Plymouth MR V10 JBB and Truro F08 K-Spa)

The field of implementation science has undergone an impressive growth in the past two decades....
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PPI Advice Clinic

The University of Exeter, St Luke's campus, South Cloisters room 2.17

Patient and Public Involvement Clinics What? These clinics have been set up to help the PenCLAHRC PPI Team...
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Rural dementia: we need to talk

19 January 2017

Research carried out by Plymouth University into the experience of dementia in farming and farming...
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Plymouth dementia expert plays role in new CAA guidelines on hidden disabilities

17 January 2017

Ian Sherriff, who is supported by PenCLAHRC, has helped develop new Civil Aviation Authority (CAA)...
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Job Opportunity - Postdoctoral Research Fellow

13 January 2017

We are looking to recruit a Research Fellow to support the work of PenCLAHRC, based...
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Research Projects


Theme: Mental Health & Dementia

This study examines why and how people’s ability to cope with poverty-related issues has become...
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Reclaiming words in everyday life: App based word retraining for people with Semantic Dementia

Theme: Mental Health & Dementia

This study aims to develop an App-based version of a word retraining program used in...
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Research Projects