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Research and Projects

AHSN/PenCLAHRC project - Patient-initiated clinics (PIC) for people with long-term conditions

Who is involved?

Theme: Person-Centred Care
Status: Complete

Read a BITE sized summary of this project.

Find out more and watch a video about patient-initiated clinics.

Background

Traditionally, many long-term conditions that require secondary care specialist reviews follow-up patients on a regular basis, e.g. every three to six months. One of the problems with this approach is that resources are used inefficiently and ineffectively both for patients and for the NHS. For example, when attending routine appointments patients may feel well and therefore don’t need to see a consultant. At other times, when their condition deteriorates or changes, they may be unable to see the clinical team at short notice.

Evidence shows that patient-initiated clinics (PIC) are a safe and cost-effective alternative approach to accessing hospital follow-up appointments. Patients have access to a telephone support line and initiate appointments only when they need them. Initially, we undertook two systematic reviews that indicate PIC can result in improved quality of life, increase patient and clinician satisfaction, and reduced healthcare resource use.

Project activity

We then undertook a number of projects to evaluate PIC further. Information about each of these is outlined below:

1. PIC for patients with rheumatoid arthritis – an implementation study

Approximately 400,000 people in the UK suffer with rheumatoid arthritis (RA), with around 12,000 people developing the condition each year. Although RA can be treated and managed effectively, it is a painful condition that has a huge impact on the lives of its sufferers. The economic costs of RA are estimated to be approximately £3.8 - £4.8 billion per year. This is made up of NHS costs and indirect costs, such as the effects of lower work productivity and the personal impact of the disease. Approximately one third of people have to stop working within two years of the onset of RA.

In most cases, patient follow-up appointments for sufferers of RA are initiated by physicians. There are often delays in follow-up, meaning patients are sometimes seen when they are well and little action is required. The introduction of a patient initiated clinic (PIC) to a hospital in the south west, means the majority of people in the area with RA now have rapid access to secondary care when they or their GP feel it is required.

The aim of this project was to evaluate the implementation of PIC into a hospital in the region by identifying the barriers and facilitators encountered that could impact the effectiveness of PIC.

Project outputs

The PIC protocol entitled 'Evaluation of a patient-initiated review system in rheumatoid arthritis: an implementation trial protocol' was published in the BMC Musculoskeletal Disorder journal in July 2012. A copy of the protocol can be viewed and downloaded from the BioMed Central website.

The qualitative study results were presented at the Exeter Health and Medical Showcase event on 27th June 2014 in a poster; 'Implementing a patient-initiated clinic for people with rheumatoid arthritis: a qualitative evaluation.'

You can read further information about this project via our Exposure story and hear more about the positive effects the project has had on both patients and hospital staff in this video:

2. Building a DIY toolkit for implementing PIC

In this project, we worked in collaboration with the South West Academic Health Science Network (AHSN) and Plymouth Hospitals NHS Trust (PHNT), to design and test a template for implementing PIC across various specialities at Derriford Hospital in Plymouth. The intention was to make a template that could be easily adapted to other specialties and organisations by leaving room for context-demanded flexibility (speciality, individual patients, specific hospital etc). Instructions on how to implement PIC within a speciality would be provided and monitoring of its success on a day-to-day basis was planned. The aim was to contribute to the straightforward implementation of PIC not only across the south west peninsula but elsewhere in the UK.

Two departments, nephrology and gastroenterology, were identified by PHNT as having appoinment delays and the potential to benefit from PIC. Rheumatology were also keen to expand PIC from patients with rheumatoid arthritis to a wider group, e.g. those with psoriatic arthritis and ankylosing spondylitis.

Although a number of focus groups were carried out with patients, along with reviews of their follow-up services and a selection of patient records, a number of issues were encountered with the roll-out of PIC across nephrology and gastroenterology. However, as of November 2015, over 900 patients with RA were signed up to PIC, with the number increasing on a weekly basis as more education sessions are undertaken, including those with psoriatic arthritis and ankylosing spondylitis. The sessions are now delivered by a Band 4 Healthcare assistant rather than Band 7 specialist nurse, thus making better use of resources.

Related publications

Related news stories

The team behind the project won this year's Health Service Journal (HSJ) Value in Healthcare Awards, which took place in Manchester on 24th May 2016. The HSJ awards seek to recognise and reward outstanding efficiency and improvement by the NHS, as well as the excellent use of resources.

The project was also named runner up for Best Practice at the British Society for Rheumatology (BSR) and Musculoskeletal Health Awards 2016, which took place earlier this year.

The project was featured on both BBC Radio Cornwall and BBC Spotlight in September 2015. A video of the Spotlight feature can be viewed below:

The project was also included as a case study in the 2014/15 PenCLAHRC Annual Report to our funders (the National Institute for Health Research). A copy of this report can be downloaded via the link in the right-hand sidebar at the top of this page under 'Downloads'.

3. Cochrane Review of PIC

PenCLAHRC's Evidence Synthesis Team are conducting a systematic review of patient-initiated clinics. The objective of this is to systematically review the evidence for a PIC system in secondary care for patients with chronic or recurrent conditions. In particular the review is interested in whether these clinics can effectively manage conditions without causing clinical harm to patients and whether resource use can be reduced in comparison to usual care.


Downloads

  • PIC case study - PenCLAHRC Annual Report 2014/15 - PDF